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Award Winning Film ‘Unrest’

October 14, 2017 by Robin Sansom

Unrest – Screening Norwich 24th Oct

Award winning film ‘Unrest’ is coming to Norwich at Cinema City Tues 24th Oct 6:15pm and will be followed by a Q&A panel with local UEA scientists, and politicians may be present. The film will also be screening at parliament. The filmmakers hope it will raise awareness and encourage governments to fund more biomedical research.

 

Cinema Tickets – click here


Home Streaming tickets

Click here

If you’re housebound or not able to make it to Norwich you can watch it at home by purchasing a digital streaming ticket.  There will also be a DVD available later on.

 


Unrest Website 

About the Film:

Jennifer Brea was a Harvard PhD who got ME following a severe virus whilst she was studying. Her husband is Omar Wassow, a Princeton Professor who was also involved in Obama’s rise to power- he also helped her film her experiences and encouraged her to lobby for change on this terrible disease. Jennifer’s feature-length documentary is now screening at select cinemas worldwide and is already winning awards at International Film Festivals. It will be screening in Parliament in a couple of weeks time and it is having it’s official UK launch next week at Mondrian, Southbank where celebrities with ME, specialists, politicians and charity leaders will all be present.

In short: ME is now finally having its moment in the spotlight because of this movie and we need YOUR help. Of course, it goes without saying that some people with ME will not be able to attend the screenings- but part of Jennifer’s distribution strategy is to ensure that those bedbound/ house bound with ME can still access it. So if they buy tickets for the Norwich screening they will then be able to live stream it at the same time as everyone else is watching the movie!

Here is Jen’s TED talk which was the most-watched TED Talk of 2016- with more than 1 million hits and climbing:

Here are two different links giving info about the Norwich screening of Unrest at Cinema City on Tuesday 24th at 6.15pm:

http://see.unrest.film/showtimes/

https://www.usheru.com/cinema-listings/…/cinema-city-norwich

Home Streaming tickets

Click here

Filed Under: Campaigning, Elevate News, Events, Local News, Regional News

Campaigning for better ME/CFS support

May 12, 2015 by Robin Sansom

ME/CFS Benefits Support

 

Raising awareness of the issues.

 

THE REALITIES OF BENEFITS PROVISION. 12th May 2015

 

Apologies to add to the monsoon of political posts but people with chronic illness are one of the groups who are already bearing the brunt of public spending cuts and I’m seeing first-hand a lot of the suffering it is causing for the people who get in touch with Elevate And this is before talk of a further £12 billion cuts which, if they go ahead, are likely to come mostly from working age benefits.

Common misconceptions.

There is a common misconception that people claiming benefits on the grounds disability and chronic illnesses are either frauds, scroungers or living in excessive luxury, and that they’re draining huge amounts public spending. This is by some distorting media reports, and a DWP feed of selective stats which don’t show the whole picture.

The information on this website defining ME and CFS, and the ME/CFS research findings, show that most people with this illness are either too ill to work at all or are limited in how much they can work.

Living Standards

As for living standards, most of the people I know with ME/CFS can only afford the bare essentials and some are even having to keep their heating at such low levels it is unhealthy.

Disability benefits are a small proportion of welfare spending.

The image below shows that only a small proportion of welfare spending is on disability benefits.

Benfits claim battles and a flawed ‘Work Capacity Assessment’.

Many in my local ME/CFS support group are having to go through long stressful battles get the benefits they need which can be detrimental to their health. We are fortunate to have the assistance of a voluntary benefits advisor/assistant/advocate but the system is still letting many people down. It was not long ago that it was said that 70% of appeals were successful which shows that the ‘Work Capacity Assessment’ is flawed. The government is now talking about scrapping the ‘work-related activity group’ of ESA. Do they they expect people suddenly go from not being able to work at all to full-time?

So what can you do to help?

You could write to your MPs. With the Tories having a weak majority, lobbying is more likely to make a difference.

Ask them to oppose cuts to disability benefits; to reform the Work Capacity Assessment; and make ensure people with disabilities and chronic illness can afford to live and have suitable transport to access the community and workplaces (especially in rural areas.)

Robin Sansom

Welfare spending illustration

 

Challenging Social Care

A blog and a campaign about issues of social care. Anne-Marie recently had a meeting with MP George Freeman and which brought about a positive and proactive response.  protectthevulnerable.blog.com/

There is also a petition here .

Filed Under: Campaigning

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