Elevate

The severely affected

Around 10 to 25% of people with ME/CFS are reported to be housebound or bedbound.

Surveys by the 25% ME Group and Action for ME show that:

  1. The overwhelming majority suffer severe pain.
  2. More than half are unable to attend their GP surgery, yet only a minority of these ever get a GP home visit.
  3. One-third waited longer than 18 months for formal diagnosis.
  4. Many feel suicidal because of their illness.
  5. Around one-third use a wheelchair.
  6. Many say that psychological strategies, such as cognitive behavioural therapy or graded exercise, have not helped or have worsened their condition.
  7. Improvements in health can occur – but over time.

Elevate home visits

New research involving severely affected patients:

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So far the severely affected have normally been excluded from research into ME/CFS so this is a vitally important piece of research which will hopefully set the ball rolling for more.