Elevate

A support group for people with ME, CFS & post viral conditions

NHS Norfolk and Suffolk ME/CFS Service

Providing:

  • Assessment & diagnosis
  • Management advice , education, support
  • For people who have a diagnosis of CFS/ME.

The team comprises of:

  • GPs with specialist interest (GPwSI) and knowledge of CFS/ME
  • Specialist occupational therapists (OT)
  • Physiotherapists (PT)
  • Administrative staff.

This is via face to face appointments, email and telephone and in a small
number of cases, home visits.

Where?

At time of writing (10/02/2014) There are clinics at:

  • Nelson Medical Centre, Gt Yarmouth.
  • Patrick Stead Hospital, Halesworth, Suffolk.
  • Bowthorpe Health Centre.
  • Shrublands Medical Practice.
  • Kirkley Mill Health Centre, Lowestoft.
  • St James Medical Practice Kings Lynn.
  • Stow Lodge Centre Stowmarket.

Some other areas they may help:

  • Suggestions to you GP with regards to treatment.
  • Medical report letters to support benefits claims.

Up-to-date info on the service

GPs may not be aware of this service but he contact details below may be useful. You can also contact the service yourself and they may send you a referal form.

NHS Norfolk & Suffolk ME/CFS Service:

01493 809 977
Herbert Matthes Block, Northgate Hospital
Northgate Street
Great Yarmouth
Norfolk
NR30 1BU.

Service development group

Service Development

This a group of  people with ME and CFS, and carers, in  Norfolk and Suffolk who are working with NHS Commissioners to improve the service.

Service development progress

Consultant on the way?

On the 24th February 2015 there was a discussion about the transition to a new service specification which has been agreed with service users and is based on the NHS Norfolk Needs Assessment.

As part of the process the NHS are to place an advertisement for a consultant to lead the new service.

The new specification is committed to the reinstatement of an acceptable patient endorsed Consultant led service as recommended repeatedly by Norfolk and Suffolk Joint Scrutiny since 2009.

Failure to do so could lead to patient harm and a failure of duty of care.  If an appropriate service is not implemented service users will consider raising complaints with Clinical Commissioning Groups locally via Healthwatch and/or complaints to the Care Quality Commission under their new enhanced powers as of April 2015 which hold local authority (and Local Authority Public Health Services) to account.